I'll be adding links as I find them
TWO months ago, the British Psychological Society released a remarkable document entitled “Understanding Psychosis and Schizophrenia.” Its authors say that hearing voices and feeling paranoid are common experiences, and are often a reaction to trauma, abuse or deprivation: “Calling them symptoms of mental illness, psychosis or schizophrenia is only one way of thinking about them, with advantages and disadvantages.”
Excellent letter to the editor from @paulsummergrad regarding psychiatric diagnoses #mentalhealth #psychiatry http://t.co/Z5lIzevffo
— American Psychiatric (@APAPsychiatric) 27. januar 2015
What can happen when you go to Psychiatrist? "None of it needed to happen" ~ https://t.co/TQ67Mf4Aif #UnderstandingPsychosis
— Anne Beirne (@amobeirne) December 19, 2014
From Twitter to print? A call for people to debate in BPS @psychmag @AllenFrancesMD style #understandingpsychosis pic.twitter.com/c8tbdwml0G
— Aaron Curtis Roberts (@Aaron_C_Roberts) December 16, 2014
Tracking mental ills on Twitter- slippery slope to Pharma pillpushing/loss of privacy/overdiagnosis
@rsm2800 @shrinkrapdinah
— Allen Frances (@AllenFrancesMD) 16. desember 2014
.@AllenFrancesMD I felt #understandingpsychosis made the same point? "Each individual’s experiences are unique... no one.. same" (p.6)
— Aaron Curtis Roberts (@Aaron_C_Roberts) December 15, 2014
"There is a worsening of the Psychosis induced by long-term use of neuroleptic drugs" ~ http://t.co/icPxz3C476 #UnderstandingPsychosis
— Anne Beirne (@amobeirne) December 15, 2014
@AllenFrancesMD @lacanlune @AnneCooke14 Diagnosis is just a superficial layer of the #understandingpsychosis onion. It's not the core.
— Rai Waddingham (@RaiWaddingham) December 16, 2014
.@AllenFrancesMD suggests #understandingpsychosis adopts a 'one-size-fits-all' approach. As you'd expect, I disagree.
http://t.co/POuo4jRDz7
— Anne Cooke (@AnneCooke14) December 15, 2014
@Aaron_C_Roberts Here's an unusual take from John Cromby - neuroscience & discursive therapies http://t.co/ivbl1j1BYo
— Anne Cooke (@AnneCooke14) December 12, 2014
@Aaron_C_Roberts @mark_bolstridge Loved tht @Shrink_at_Large called #understandingpsychosis 'Open Dialogue in Action'
http://t.co/ArZRkHNEWW
— Anne Cooke (@AnneCooke14) December 9, 2014
#Understandingpsychosis You should, in science, believe logic and arguments, carefully drawn, and not authorities. – Feynman @Keith_Laws
— James C.Coyne (@CoyneoftheRealm) December 9, 2014
We need brave people to speak out - My report on the #understandingpsychosis event in The Psychologist https://t.co/WdRoGXTPsi via @psychmag
— Angela Gilchrist (@cyberwhispers) December 9, 2014
Interesting review of #understandingpsychosis from my chaise-longue owning critical Twitter friend @thepsychclinic.
http://t.co/iveMl2Y2Kj
— Anne Cooke (@AnneCooke14) December 6, 2014
Carl Heneghan:
Evidence based medicine on trial
4 Dec, 14 | by BMJ Evidence based medicine (EBM) should form the foundation of effective clinical decision making; however, growing unrest—and an awful lot of criticism—suggests the evidence bit of EBM is increasingly part of the problem, and not the solution.
"Carl Heneghan jointly runs the Evidence Live conference with The BMJ and is a founder of the AllTrials campaign."
Interesting. And does this study of "low and moderate use" invalidate all other studies?
Low and moderate use of anti-psychotics associated with lower mortality than no use at all: http://t.co/O0dexsFp7J
(HT @AllenFrancesMD)
— Huw (@Huwtube) December 5, 2014
Apparently:
Thanks 2 @Huwtube for link shows NOT antipsychotics lead to higher mortality in psychosis: shot the fox of anti meds http://t.co/4R62jdr10X
— Samei Huda (@SameiHuda) December 6, 2014
Via Tallaght Trialogue :
A movement to bring people with experience of mental distress into the discourse around care and treatment can revive services in the UK
#understandingpsychosis http://t.co/j4DzMS1w0y
— Jolie Goodman (@JolieGoodman) December 4, 2014
The inside story of #understandingpsychosis. It starts 15 years ago this month in @peterkinderman's basement.
http://t.co/kwboSOTtAn
— Anne Cooke (@AnneCooke14) December 5, 2014
Recent advances in understanding mental illness and psychotic experience. http://t.co/zvncq5SUsf Is it better than #understandingpsychosis?
— Duncan Double (@DBDouble) December 5, 2014
'Heroes of Uncertainty, Science and Psychiatry'. A fab, topical read: http://t.co/zWs98RZB6c #understandingpsychosis
— Dr Jay Watts (@Shrink_at_Large) 29. november 2014
The article was written in 2013. A quote:The desire to be more like the hard sciences has distorted economics, education, political science, psychiatry and other behavioral fields. It’s led practitioners to claim more knowledge than they can possibly have. It’s devalued a certain sort of hybrid mentality that is better suited to these realms, the mentality that has one foot in the world of science and one in the liberal arts, that involves bringing multiple vantage points to human behavior.
Comment from 'an observer' provides vital analysis on alleged 'turf wars': Reflections on #UnderstandingPsychosis http://t.co/OURfY8eitE
— Jacqui Dillon (@JacquiDillon) 5. desember 2014
I wish I could get in touch to ask An Observer for permission to quote the entire comment. Instead I'll paste in some paragraphs:But I’m not entirely happy with Mental Elf’s reflection. The most unhelpful part is the subtle (deliberate?) slide from ‘psychology vs psychiatry models’ (fairly accurate, although actually the report calls for a psychosocial model) to ‘psychologists vs psychiatrists.’ The other side of the coin from the extraordinarily aggressive responses by (some) defenders of psychiatric models was, in my view, the admirable restraint shown by the report’s authors – and from their colleagues. In fact, one of the charges levelled against them was that they were NOT responding – despite what seemed to be numerous provocations.
And let’s not forget the (inconvenient to some) fact that the report was launched and endorsed by two of the most senior psychiatrists in the country. So, I would argue that at least in relation to the recent debate, it is both untrue and unhelpful to talk about an interprofessional war. No wonder service users get upset if they are constantly told that this is what is going on. Why, then, do (some) people in responsible positions continue to promote this narrative? Well, I don’t think it’s too cynical to speculate that this serves as a convenient way of defusing challenges to entrenched positions and vested interests. Far easier to depict these uncomfortable but necessary critiques as some kind of narrow professional spat, and call for everyone to behave themselves – which is thinly disguised code for ‘Don’t dare challenge the status quo.(Highlighting mine)
- See more at: http://www.thementalelf.net/mental-health-conditions/psychosis/reflections-on-understandingpsychosis/#sthash.SL29lytn.dpuf
Complementary what? Belief systems?
"Put down the pies guys! The psychological & medical models are complementary" Reflections on #UnderstandingPsychosis http://t.co/70bNoU3cil
— The Mental Elf (@Mental_Elf) December 4, 2014
Critical appraisal of what?
"Critical appraisal will always be a core part of what we do" Reflections on #UnderstandingPsychosis http://t.co/tF3wpT5T8B
— The Mental Elf (@Mental_Elf) December 4, 2014
And before this report, no patients with symptoms of psychosis have died by suicide or gone to prison, and no carers have suffered?
My opinion is that many patients with psychosis might die by suicide to go to prison& many carers will suffer from this report. @Mental_Elf
— Ivana Fulli (@DrFulli) December 4, 2014
#UnderstandingPsychosis With > 5 million people in UK on anti-depressants, if they work why are there so many dead? http://t.co/foZyOi4WHq
— Anne Beirne (@amobeirne) December 4, 2014
#understandingpsychosis OPEN DIALOGUE: an alternative Finnish approach to healing psychosis ~ https://t.co/yII3ohGiFX
— Anne Beirne (@amobeirne) December 3, 2014
Crucial that people who do not connect trauma with psychosis also be heard.
Voices of family members of persons with psychosis suppressed by #understandingpsychosis pic.twitter.com/U0n3ZJtQm6
— James C.Coyne (@CoyneoftheRealm) November 30, 2014
Welcome to the Circle Jerk: My Response to the @Mental_Elf's Critique of "Understanding Psychosis" http://t.co/tREJ3I7ci1
— Angela Wilson Ursery (@HerHealthySelf) November 30, 2014
MT @clareallan: I have been pretty shocked at the level of vitriol and the with us/against us mentality [re #understandingpsychosis]
— Angela Wilson Ursery (@HerHealthySelf) December 3, 2014
I will be embedding some tweets that make me wonder if the tweeter and I are living in parallel universes. Like this one by dr Ivana Fulli
#Understandingpsychosis is basically misinforming,manipulating,selling false hopes using some SU IMO @rubeusflint @AllenFrancesMD @WesselyS
— Ivana Fulli (@DrFulli) December 3, 2014
David Smail on mental health and the professional elite http://t.co/hfv3CMBU5i #WMHD14 pic.twitter.com/a84Mq4PzUG
— Andy Fugard (@inductivestep) October 10, 2014
@Suanta1 I so hope we've done that with #understandingpsychosis. I was moved when someone said this yesterday pic.twitter.com/ICl6PR4KBE
— Anne Cooke (@AnneCooke14) November 23, 2014
Great quote via @AnneCooke14. #understandingpsychosis #coproduction #mentalhealth pic.twitter.com/TavKmSYlY0
— Karen Larbi (@whythedarkness) November 22, 2014
"#UnderstandingPsychosis is bubbling over with multiple voices, esp voices of those most subjugated"
@Shrink_at_Large
http://t.co/e36hunNl7t
— Anne Cooke (@AnneCooke14) November 30, 2014
Timely. Is there false hope in the expected recovery of persons with psychosis? #understandingpsychosis http://t.co/eISr7hbVRn
— James C.Coyne (@CoyneoftheRealm) December 1, 2014
Bookmarking this to read later
Using consumer testimonials, not evidence, to market products, #understandingpsychosis like #Pfizer. pic.twitter.com/OKbt7GHxex
— James C.Coyne (@CoyneoftheRealm) December 3, 2014
Is James Coyne actually comparing use of positive narratives from service users with massively unethical marketing of psychopharmaceuticals?
Fab piece on #understandingpsychosis by @clareallan:If psychosis is a rational response to abuse, let’s talk about it http://t.co/RbA5Bb7Vmy
— Jacqui Dillon (@JacquiDillon) December 2, 2014
The #UnderstandingPsychosis document. Thoughts from me: https://t.co/g0RVk0Q8AU
— Huw (@Huwtube) 27. november 2014
Further down there is a collection of links and tweets about the discussion that Charlotte Walker describes here:
NEW BLOG POST! A guest at an awkward party: a service user observes the acrimony psychologists and psychiatrists http://t.co/S2C74TdeHZ
— Charlotte Walker (@BipolarBlogger) November 28, 2014
I have been a service user, I don't belong in any of the warring ideological camps, and following this discussion is like watching turf wars of woo. Is it hopelessly naive of me to wish that professionals in a field called "mental health" could engage in more mentally healthy forms of communication?
Steve Flatt says it for me in:
The futility of medicine versus psychology in mental health
Thanks to dr Samei Huda for giving me the link to this article on Twitter.
Quoting:
So much of the time the focus is not on the client but professional standing, service requirements and power.
I have worked in and around primary care for 20 years after qualifying and during that time I have seen so many professionals lose sight of their role as a health professional and focus on their careers rather than promoting health or at least “doing no harm”.
A good doctor will focus upon the best medication for a particular presentation, the characteristics of the individual and the situation. The trouble with psychiatric medicine is that while there are symptoms there is no source and no signs for most psychiatric diagnoses. This reality makes diagnosis at best a finger in the wind task as it is reliant upon the person’s self report.
However, psychology has the same problem with formulation. How does the clinician know when they have gathered enough of the right information to make an accurate formulation, even with the wholehearted co-operation of the individual. Furthermore, how much of the past is relevant to the formulation? Even that knowledge of the past may adversely bias attention toward a particular formulation or diagnosis that is a pet issue for the professional.
In mental health, psychiatry, psychology the only expert in their lives is the person experiencing it. Surely our first and foremost question to them should be, what would your life be like if it were working better, if our intervention had been useful; if you were experiencing more of what you wanted? Rather than assuming that they wish to get rid of something, which is the traditional approach in both psychiatry and psychology. An approach that has developed from the medical model of treating illness, the removal of infection, pain and physical distress.
The sentence that I have bolded is reinforced here:
In mental health, vital question neither "What's wrong with you?" or "What happened to you?", but "How do you need/want yr life to change?"
— Lancet Psychiatry (@TheLancetPsych) December 1, 2014
This book is relevant:
Power, interest and psychology by David Smail
The link is to a review by Andy Fugard, @inductivestep, and I quote him here:
Therapy, Smail argues, tries to boost the perception of clients’ power to change, when in reality it is actual power that clients often need: power over material resources, money, employment, education; personal resources such as confidence and intellect; home and family life, a love life, and an active social life (Hagan & Smail, 1997). These are areas which often cannot be influenced by talk in the clinic. So why has individual therapy grown so popular? Smail argues – and emphasises that it’s nothing to be ashamed of – that therapists rely on income to put food on the table and pay the rent, just like their clients. He illustrates with the example of Sigmund Freud (p. 3) who wrote that “My mood also depends very strongly on my earnings… I have come to know the helplessness of poverty and continually fear it”. Freud, he argues, changed his theories so as not to offend those who paid the bills, e.g., clients’ parents. Smail argues that there is a great mysticism around therapy (p. 8): “rituals of therapeutic cure… bear a strong resemblance to the spells and incantations of sorcerers”, with practitioners rarely explaining to clients how their techniques (supposedly?) work. Together these interests help sustain psychotherapy.
The comment section to "Understanding Psychosis and Schizophrenia: a critique by Laws, Langford and Huda" has embedded tweets, so my embeds are superfluous, but I'm keeping them anyway.
And my contribution to the discussion is a link to this book:
The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma
Bessel van der Kolk MD (Author)He has a trauma-informed view of psychosis:
Our great teacher, Elvin Semrad, actively discouraged us from reading psychiatry textbooks during our first year. (This intellectual starvation diet may account for the fact that most of us later became voracious readers and prolific writers.) Semrad did not want our perceptions of reality to become obscured by the pseudocertainties of psychiatric diagnoses. I remember asking him once: “What would you call this patient— schizophrenic or schizoaffective?” He paused and stroked his chin, apparently in deep thought. “I think I’d call him Michael McIntyre,” he replied.
Its all a bit petty and seems to be trying to defend the dogmatic status quo drugs and Dx @Mental_Elf @Keith_Laws @PsychiatrySHO @SameiHuda
— Rufus May (@Rufusmay) 29. november 2014
@Mental_Elf @Rufusmay @PsychiatrySHO @SameiHuda I think a bit of self reflection would help regarding 'petty' claims
— Keith R Laws (@Keith_Laws) 29. november 2014
I agree: “@Rufusmay: The ethos of the BPS report is about promoting choice of approaches and frameworks” Thanks, Rufus, well put.
— Peter Kinderman (@peterkinderman) 29. november 2014
I was reluctant… it seemed like entirely unnecessary point-scoring after a day of huge agreement. But… a few misunderstandings @mental_elf
— Peter Kinderman (@peterkinderman) 29. november 2014
I appreciate that. But there are ways of achieving debate, and there are real people caught, irritated, in the middle. @mental_elf
— Peter Kinderman (@peterkinderman) 29. november 2014
… But let's debate Thursday's unanimous call for collective action to improve services, not focus on point-scoring critiques @mental_elf
— Peter Kinderman (@peterkinderman) 29. november 2014
BBC News - teenager with mental health problems held for days in police cells. ACC pleading for help. http://t.co/OqUFUnaZgN
— Peter Kinderman (@peterkinderman) 29. november 2014
CRPD Committee: ... repeal all legislation that authorizes medical intervention without the free and informed consent http://t.co/dcLslKGnzz
— Sigrun Tømmerås (en) (@SigNorway) 28. november 2014
TX @davetraxson+ GREAT book RT
@peterkinderman -Why We Need to Abandon'Medical Model' Dx ... http://t.co/eGK2aTjfZc …& note:huge agreement!
— kevin zdanieckilav (@borromeannot) 29. november 2014
Here's the bigger picture (literally).
"Small", but significant.
@Keith_Laws @PsychiatrySHO @SameiHuda @Mental_Elf pic.twitter.com/31aQHFyXWG
— Peter Kinderman (@peterkinderman) 29. november 2014
From David's presentation, reproduced, in general terms, here:
http://t.co/v0BtXWVlDk
@Keith_Laws @PsychiatrySHO @SameiHuda @Mental_Elf
— Peter Kinderman (@peterkinderman) 29. november 2014
Absolutely. And let's conduct that debate in a respectful and inclusive manner. @Mental_Elf
— Peter Kinderman (@peterkinderman) 29. november 2014
… But let's debate Thursday's unanimous call for collective action to improve services, not focus on point-scoring critiques @mental_elf
— Peter Kinderman (@peterkinderman) 29. november 2014
BPS president elect is trying to silence twitter discussion of dire BPS paper https://t.co/LJaqWlDUkO
http://t.co/VHI0GphgKo Very backward.
— ben goldacre (@bengoldacre) November 29, 2014
Clinical Psychologists are great. It's appalling to see the BPS misrepresent evidence in their name. Great piece: http://t.co/P1ra8HeO8Z
— ben goldacre (@bengoldacre) November 28, 2014
Unfortunately, it just got ugly again. Why can't we just play nice, and help people together? https://t.co/hPs7aKDg6M
— Alex Langford (@PsychiatrySHO) November 28, 2014
Next year, to build mental health bridges, I might do some interview or discussion-based blogs. Who should I talk to?
— Alex Langford (@PsychiatrySHO) November 29, 2014
via @beyondmeds:
In terms of how I think MH activism should go, and how I'd like to be part of making it go, this can't be bettered http://t.co/lroU8d2rYL
— sometimes_explode (@dronemodule) November 30, 2014
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